Ser cuidador de pacientes con Parkinson afecta la calidad de vida y puede producir estrés
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Date
2018
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Universidad Católica Luis Amigo
Abstract
En el presente artículo se abordarán como las enfermedades crónicas afectan significativamente los estados anímicos del cuidador del paciente, generando situaciones de estrés y afectando su calidad de vida, se pueden definir las enfermedades crónicas como aquellas que comúnmente se adquieren por medio de estilos de vidas inapropiados, aunque siempre hay que considerar que existen factores genéticos, de naturaleza hereditaria, que concierne a estas condiciones, estas generan dependencia, donde puede haber pérdida total de la autonomía y se necesita un cuidador para ayudar a cumplir con las actividades cotidianas, sin embargo en otros casos el individuo es capaz de favorecer el autocuidado; pero requiere un cuidador que le proporcione apoyo y acompañamiento en el proceso de la enfermedad y en la asistencia a los servicios de salud. Por lo tanto, se hace indispensable el rol del cuidador y por ende es importante considerar como éste se ve afectado por el devenir de su rol. Este artículo se enfoca especialmente en los Cuidadores de pacientes con enfermedad de Parkinson, como estos cuidadores deben obtener la capacidad de hacer una escisión entre su vida personal y en su vida como rol de cuidador, pues se evidencia, a partir de investigaciones y pruebas, que al no realizar esta división los niveles en los que se ve afectada negativamente la calidad de vida del cuidador son muchísimo más altos que quienes aprenden a hacer un mejor manejo de las situaciones, además de observarse niveles más altos de estrés en quienes no tienen herramientas suficientes para enfrentarse a este rol. Según la OMS “La enfermedad de Parkinson es una condición neurodegenerativa, una enfermedad que afecta a las células nerviosas en el cerebro que controlan el movimiento. La Enfermedad de Parkinson es progresiva, lo que significa que los síntomas aparecen gradualmente y empeoran lentamente.
This article will address how chronic illnesses significantly affect the mood of the patient's caregiver, generating stressful situations and affecting their quality of life. Chronic illnesses can be defined as those commonly acquired through inappropriate lifestyles, although genetic factors of a hereditary nature must always be considered. These illnesses generate dependence, where there may be a total loss of autonomy and a caregiver is needed to help with daily activities. However, in other cases, the individual is able to promote self-care; but requires a caregiver to provide support and accompaniment in the disease process and in attending health services. Therefore, the role of the caregiver is indispensable, and it is important to consider how they are affected by the evolution of their role. This article focuses especially on caregivers of patients with Parkinson's disease and how these caregivers must acquire the ability to make a separation between their personal life and their life as a caregiver, as it is evident, from research and tests, that failure to make this division results in significantly higher negative impacts on the caregiver's quality of life than those who learn to better manage situations. In addition, higher levels of stress are observed in those who lack sufficient tools to cope with this role. According to the WHO, "Parkinson's disease is a neurodegenerative condition, a disease that affects the nerve cells in the brain that control movement. Parkinson's disease is progressive, which means that symptoms appear gradually and worsen slowly."
This article will address how chronic illnesses significantly affect the mood of the patient's caregiver, generating stressful situations and affecting their quality of life. Chronic illnesses can be defined as those commonly acquired through inappropriate lifestyles, although genetic factors of a hereditary nature must always be considered. These illnesses generate dependence, where there may be a total loss of autonomy and a caregiver is needed to help with daily activities. However, in other cases, the individual is able to promote self-care; but requires a caregiver to provide support and accompaniment in the disease process and in attending health services. Therefore, the role of the caregiver is indispensable, and it is important to consider how they are affected by the evolution of their role. This article focuses especially on caregivers of patients with Parkinson's disease and how these caregivers must acquire the ability to make a separation between their personal life and their life as a caregiver, as it is evident, from research and tests, that failure to make this division results in significantly higher negative impacts on the caregiver's quality of life than those who learn to better manage situations. In addition, higher levels of stress are observed in those who lack sufficient tools to cope with this role. According to the WHO, "Parkinson's disease is a neurodegenerative condition, a disease that affects the nerve cells in the brain that control movement. Parkinson's disease is progressive, which means that symptoms appear gradually and worsen slowly."